Despite all the proven advances of modern medicine, certain people are drawn to non-traditional or “natural” cures and approaches. A number of these do no harm. As one cancer specialist noted recently, people undergoing cancer treatment will frequently try meditation or vitamins too. When such a practice is in addition to, and not instead of, evidence-based treatment, this is typically not a concern. If it reduces distress, it can help.
But the explosion of online health influencers poses problems that governments and regulators in many countries have not fully understood. A recent inquiry into one such organization offering membership and advice to pregnant mothers has revealed dozens cases of third-trimester stillbirths or other severe injury involving mothers or birth attendants associated with it. While the entity is headquartered in North Carolina, its influence is global.
“Across whole populations, going through labour and birth without skilled support is linked to higher levels of risk for mother and baby,” according to a professor of midwifery.
Childbirth without medical assistance, sometimes called free birth, is legal in nations including the UK and US. The potential dangers are not well understood due to a lack of reliable information. Childbirth can be a daunting prospect, and high-quality care is far from guaranteed. In England, a alarming recent report found a large majority of maternity units to be unsafe or in need of improvement.
Criticisms of medical systems and specific, longstanding issues with maternity care are in many cases justified. A significant number of the women spoken to for the inquiry had in the past experienced distressing births.
But while distrust of established systems may be rooted in experience, it has also proved to be a fertile ground for other influencers seeking converts to their unorthodox methods and DIY ethos. During the pandemic, a “wellness” industry supposedly focused on healthy living was involved in spreading falsehoods about vaccines and feeding suspicion about official advice.
Worry is rising that such beliefs are acquiring more widespread purchase. One paper given at a medical symposium focused on misinformation, which it said had “acutely worsened in the past decade”. The inquiry shows that behind the facade of an rebellious community lies an enterprise that coaches women as social media influencers as in addition to birth attendants. The organization does not present itself to be a certified medical provider.
There is no turning the clock back to a time when doctors were assumed to know best. Huge quantities of scientific research are published online and many people use these to beneficial effect. But there is also a need for protections from poor advice. It is widely understood that the automated systems used by tech companies reward more extreme content.
In the UK, improvements to maternity services cannot come soon enough. They must include the option of home birth and the provision of data to support women in choosing their care. Policymakers and organizations such as the World Health Organization should also develop strategies for the information ecosystem so that science-based healthcare is not undermined.
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